Hearts for Ezra

WHAT WE DO

At 4 months of age Sweet Ezra was diagnosed with Spinal Muscular Atrophy (SMA) Type I, a fatal disease with no cure. He died on February 5 2013. He was only 8 months old. Our hearts are broken. Our goal is to raise awareness and fight to find a cure for SMA. 1 in 40 people are carriers and one out of every 6000 babies is born with SMA. It is the #1 genetic killer of children under 2. We appreciate your support in helping us reach our goal...

Kennebec Journal Article March 3, 2013 http://www.kjonline.com/news/Hallowell-mothers-blog-shares-familys-love-pain-for-lost-son-worldwide.html Thanks to Craig Crosby for doing this interview and Andy Malloy for the photos!

Upcoming Events

MARK YOUR CALENDARS... In honor of Spinal Muscular Atrophy Awareness Month, Hearts for Ezra is sponsoring a FAMILY WELLNESS and FUN DAY on Saturday August 17th. The event will be held on the fields next to the YMCA in Augusta... Trust me when I say- you will not want to miss this event! We have lots of fun surprises up our sleeves, and our planning committee is already hard at work! Stay tuned for more information...

Donate

Help us with our mission to raise awareness and help fight SMA.

You can donate to Hearts for Ezra online via PayPal by clicking on the following link. http://tinyurl.com/heartsforezra People wishing to mail a donation to the "Hearts for Ezra" fund can make checks out to "Hearts for Ezra" and mail them to the address below: Kennebec Savings Bank Attn: Deb Coloumbe 150 State Street, PO Box 50 Augusta, ME 04332 These funds are going to help raise awareness of SMA and eventually help to find a cure for this horrible disease. Thanks in advance for all your support!

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Contact us.

Facebook Hearts for Ezra's Page Twitter @HeartsforEzra Phone 512.922.5756 Email heartsforezra@gmail.com